MS in the 21st Century (MS21) is an initiative that began in 2011, with a goal of redefining and standardising MS care and treatment globally.  Our Steering Group was formed, comprising of international MS experts (neurologists, pharmacoeconomists, MS nurses and psychologists), and in our initial meetings, we defined our mission statement, to enable ‘full access to personalised treatment, with reimbursement, to achieve freedom from disease’.

In 2016, recognising the importance of incorporating the patient voice into any work intended to impact patient quality of life, a corresponding patient Steering Group was formed, and MS21 became dedicated to improving standards of care for people with MS, with interesting results. Over the course of 2016, the group held a number of joint workshops, and it quickly became apparent that there are significant disparities between the opinions of patients and healthcare professionals on what are the most important unmet needs in MS care.

With this in mind, we changed our tack, and since 2016 our focus has been on improving education of, and communication between, healthcare professionals and people with MS. Now in our seventh year, the group has created a name for itself on the international congress scene, has created numerous resources, and published 3 peer-reviewed papers.

Watch this space to see what MS21 will be working on next. 

 

Meet the Healthcare Professionals

Our Steering Group consists of international experts involved in the care and management of patients with MS. To find out more about the members and what they bring to the group, click on their profiles below. 

Peter Rieckmann Chair, MS21

Professor of Neurology, Head and Chair, Specialist Clinic for Neurology

Dawn Langdon Co-chair, MS21

Professor of Neuropsychology and Director of Health and Medicine, Royal Holloway University of London

Gavin Giovannoni

Blizard Institute of Neurology Barts and The London School of Medicine and Dentistry

Jürg Kesselring

Head Department of Neurorehabilitation, Rehabilitation Centre, Valens

Sarah Morrow

Associate Professor Department of Neurology, Western University

Celia Oreja-Guevara

Clinical Research Co-ordinator, University Hospital San Carlos

Sven Schippling

Deputy Head Department of Neurology, University Hospital Zurich

Heidi Thompson

Neurology Nurse, Craigavon Hospital

Patrick Vermersch

Head of Neurology, University Hospital Lille

Meet the patient representatives

In 2016, the MS in the 21st Century Steering Group decided that incorporating the patient voice into their work was vital.
Patients were selected based on 2 criteria; they should be actively involved with an MS Patient Association, and they should represent different countries. To find out more about the members and what they bring to the group, click on their profiles below.

Birgit Bauer

MS21 Patient Steering Group

Maria Paz Giambastiani

MS21 Patient Steering Group

Jocelyne Nouvet-Gire

MS21 Patient Steering Group

Maija Pontaga

MS21 Patient Steering Group

Stanca Potra

MS21 Patient Steering Group

Jane Shanahan

MS21 Patient Steering Group

Pieter van Galen

MS21 Patient Steering Group

David Yeandle

MS21 Patient Steering Group