Mult Scler Relat Disord. 2018 Jan;19:153-60.
Since 2016, the group has had a unique position as a joint patient and healthcare professional steering group. Having identfiied differences between the opinions of the two groups on the greatest unmet needs in MS care, this paper sets out to provide practical actions on how communication can be improved, and gaps in MS care can be addressed through collaborative patient and healthcare professional projects.
J Neurol. 2013 Feb;260(2):462-9.
The first article published by MS in the 21st Century in 2013 was a public statement on what they think MS care should look like in the future. The publication was created after three phases of discussions, during which the steering group envisaged that MS care should include full access to personalised treatment, with reimbursement, to achieve freedom from disease.
Mult Scler Relat Disord. 2015 May;4(3):202-18.
For their second published paper, the MS in the 21st Century Steering Group members researched examples of how best to motivate patients to get involved in their care (patient engagement strategies) and examined ways in which this has worked well in other chronic disease areas. After workshop discussions, the group decided to publish their views on how to achieve patient engagement, and suggest practical ways to overcome any barriers to patient involvement.
MS in the 21st Century is also proud to have published 5 posters to date at international scientific congresses, with a number of them having been nominated for or received awards. The posters below include data generated by the group on perceptions of unmet needs in MS and international distribution of educational resources for MS patients.
Presented by Prof Peter Rieckmann at CONy, 2017 in Athens
Presented by Prof Celia Oreja-Guevara at CMSC, 2017 in New Orleans
(Electronic copy only)
Presented by Prof Dawn Langdon at ECTRIMS, 2017 in Paris
Presented by Prof Sarah Morrow at CMSC, 2018 in Nashville
Dealing with a diagnosis of MS; are patients well prepared?
What resources do patients find helpful to support them?
Since 2016, we have been particularly active representing at congresses all across the world. The videos below are from our symposium held at CMSC in 2017.